Patient-led data sharing for clinical bioinformatics research: USCDI and beyond.
William J. GordonDaniel GottliebDavid A. KredaJoshua C. MandelKenneth D. MandlIsaac S. KohanePublished in: J. Am. Medical Informatics Assoc. (2021)
Keyphrases
- data sharing
- patient data
- clinical practice
- clinical data
- clinical trials
- medical treatment
- clinical information
- video endoscopy
- clinical setting
- medical records
- data access
- patient records
- real patient data
- maxillofacial surgery
- treatment planning
- data integration
- medical data
- medical experts
- distributed data
- patient care
- primary care
- information sharing
- acute myocardial infarction
- intensive care
- therapy planning
- intensive care unit
- peer to peer
- data privacy
- heart disease
- health care
- cancer patients
- medical knowledge
- private data
- care delivery
- clinical workflow
- semantic interoperability
- clinical guidelines
- medical images
- data sets
- computer interpretable
- disease progression
- database
- decision support system
- patient groups
- data management
- data sources
- database systems
- case study