Engaging Patients & Families in Contributing Patient-Reported Outcomes to a Pediatric Disease Registry for Comparative Effectiveness Research.
Elissa R. WeitzmanParissa K. SalimianKaren L. OlsonKenneth D. MandlMarc D. NatterPublished in: AMIA (2015)
Keyphrases
- medical doctors
- patient groups
- emergency department
- clinical studies
- patient data
- liver disease
- clinical data
- disease progression
- cancer patients
- cardiovascular disease
- chronic obstructive pulmonary disease
- medical data
- clinical information
- chronic disease
- clinical trials
- breast cancer patients
- vital signs
- medical experts
- patient outcomes
- intensive care
- patient records
- medical center
- medical treatment
- medical practitioners
- medical care
- early diagnosis
- multiple sclerosis
- therapy planning
- blood pressure
- diabetic patients
- neurological disorders
- spinal cord injury
- blood glucose
- web services
- medical staff
- electronic health records
- high risk
- magnetic resonance images
- primary care
- electronic medical record
- heart disease
- medical knowledge
- medical records
- health care services
- breast cancer
- metadata