"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.
Sara M. AndrewsMelissa RaspaAnne EdwardsRebecca MoultrieLauren Turner-BrownLaura WagnerAlexandra Alvarez RivasMary Katherine FrischAnne C. WheelerPublished in: J. Am. Medical Informatics Assoc. (2020)